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RE: [rda-legalinterop-ig] [rda-legalinterop-ig] [rda-legalinterop-ig] legal interoperab…

  • Creator
    Discussion
  • #123124

    John has also keynoted before at RDA — he’s wonderful. It would be great to have someone who has not spoken before though.
    Fran
    Dr. Francine Berman
    Chair, Research Data Alliance / US
    Edward P. Hamilton Distinguished Professor of Computer Science
    Director, Center for a Digital Society
    Rensselaer Polytechnic Institute
    http://www.cs.rpi.edu/~bermaf/
    —–Original Message—–
    From: punk.kish=***@***.***-groups.org [mailto:***@***.***-groups.org] On Behalf Of punkish
    Sent: Friday, February 19, 2016 2:34 AM
    To: RDA/CODATA Legal Interoperability IG
    Cc: jbminster; Donat Agosti; Mr. Paul F Uhlir; Lisa Neidert
    Subject: Re: [rda-legalinterop-ig] [rda-legalinterop-ig] [rda-legalinterop-ig] legal interoperab…
    John is always be a dependable choice for a speaker, but Stephen Friend (co-founder of Sage Bionetworks where John works) already keynoted RDA in San Diego.
    An even better option would be a researcher or a patient in the thick of all of this. As Lisa mentioned, many of the folks listed on the “Sharing v Privacy” workshop website would be a good choice as that workshop was exactly about the tension between sharing and privacy. I would recommend Sharon Terry. Here is a recent article by Sharon that wonderfully lays out a problem with the status quo.
    Disclosure: I dreamed up the “Sharing v Privacy” workshop, and organized it in collaboration with UCSF, the Personal Genome Project and the U of Zürich, with generous support from the Robert Wood Johnson Foundation.

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    Replies
  • #133374

    Thanks Francine. I was just going to say that. I still remember John´s presentation very well.
    —–Mensaje original—–
    De: bermaf=***@***.***-groups.org [mailto:***@***.***-groups.org] En nombre de Berman
    Enviado el: viernes, 19 de febrero de 2016 13:07
    Para: punkish; RDA/CODATA Legal Interoperability IG
    CC: jbminster; Donat Agosti; Mr. Paul F Uhlir; Lisa Neidert
    Asunto: [rda-legalinterop-ig] RE: [rda-legalinterop-ig] [rda-legalinterop-ig] [rda-legalinterop-ig] legal interoperab…
    John has also keynoted before at RDA — he’s wonderful. It would be great to have someone who has not spoken before though.
    Fran
    Dr. Francine Berman
    Chair, Research Data Alliance / US
    Edward P. Hamilton Distinguished Professor of Computer Science Director, Center for a Digital Society Rensselaer Polytechnic Institute http://www.cs.rpi.edu/~bermaf/
    —–Original Message—–
    From: punk.kish=***@***.***-groups.org [mailto:***@***.***-groups.org] On Behalf Of punkish
    Sent: Friday, February 19, 2016 2:34 AM
    To: RDA/CODATA Legal Interoperability IG
    Cc: jbminster; Donat Agosti; Mr. Paul F Uhlir; Lisa Neidert
    Subject: Re: [rda-legalinterop-ig] [rda-legalinterop-ig] [rda-legalinterop-ig] legal interoperab…
    John is always be a dependable choice for a speaker, but Stephen Friend (co-founder of Sage Bionetworks where John works) already keynoted RDA in San Diego.
    An even better option would be a researcher or a patient in the thick of all of this. As Lisa mentioned, many of the folks listed on the “Sharing v Privacy” workshop website would be a good choice as that workshop was exactly about the tension between sharing and privacy. I would recommend Sharon Terry. Here is a recent article by Sharon that wonderfully lays out a problem with the status quo.
    Disclosure: I dreamed up the “Sharing v Privacy” workshop, and organized it in collaboration with UCSF, the Personal Genome Project and the U of Zürich, with generous support from the Robert Wood Johnson Foundation.

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  • #133373

    Well, this is very silly of me, talking about a link but not providing it. Here is the article by Sharon Terry, really worth reading.
    “Life as a numerator: Putting the person in personal genomics” http://www.sciencedirect.com/science/article/pii/S2212066116300072
    And yes, to echo Fran, get someone who hasn’t spoken before at RDA.

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