[Anne Cambon-Thomsen]

Dear members of the RDA COVID 19 Legal-Ethical sub-group,
Welcome in this COVID-19 sub-group, and thank you for your interest and
motivation. Here are a set of information regarding our work.
1) We have a second meeting today 30 April at 8.30 PM UTC (early morning
1 May for our Australian colleagues);
link to join is :
https://global.gotomeeting.com/join/903049133
The full connection information, also if joining by phone is below this
mail;
2) The tentative agenda for the today meeting (you can add to it, bu it
is already busy) and the Agenda and notes of the first meeting held the
27 April are here in our sub-group rolling agenda-minutes google
document :
https://docs.google.com/document/d/1hwh-KTeu70NJIn-Z4tfH08AspyN0_m923uh9…
3) The draft document of the sub-group (google doc) set up after the
fisrt meeting and that some of you have started to populate is here :
https://docs.google.com/document/d/1PEVIsQbGAS_MRqnGUz6HlNuFe5j7uKgqbgDh…
4) If you wish to join the zotero group for contributing/annotating
resources and have not yet done so you can get included by adding your
name to the ZOTERO GROUP MEMBER LIST (link below) :
https://docs.google.com/document/d/1SyK5REVo9EKG_bQHUi9bsmIU7MnxJ5mUEcZp…
As a matter of fact, the RDA COVID-19 zotero web file is not public yet
until it has been properly populated an curated; the documents referred
to there are the basis of the recommendations we formulate.
5) Attached to this mail and already sent with the mail below, sent by
Alexander Bernier yesterday to the list we had before the official
creation of the sub-group (sorry for cross-posting to some of you).
    * The first document is a proposed structure for the guidelines /
output of our Sub-Working Group. The document draws from the suggestions
in the kick off teleconference  of 27 April, and contributions to the
shared Google Doc since then. We look forward to further refining the
proposed output in the coming days.
    * The second document is a draft ontology composed by Brian
Pickering that proposes tags and sub-tags for assigning Zotero labels to
resources based on their ethical and legal content in a streamlined way.
The guidance you have composed thus far and until Friday morning (CET)
in the shared Google Drive will serve as the foundation of these
documents, to be refined by your further contributions.
All useful documents produced will be made accessible to the group in
the webpage folders of the sub-group later on :
https://www.rd-alliance.org/groups/rda-covid19-legal-ethical
.
Sincerely,
Co-chair assigned:  Anne Cambon-Thomsen
Moderator(s): Alexander Bernier
, John Brian
Pickering
Email: ***@***.***-groups.org
*RDA COVID WG*Legal-ethical sub-group, meeting information:
*Please join the meeting from your computer, tablet or smartphone.*
https://global.gotomeeting.com/join/903049133
*You can also dial in using your phone.*
United States:+1 (312) 757-3117
*Access Code:903-049-133*
*More phone numbers*
Australia:+61 2 8355 1038
Austria:+43 7 2081 5337
Belgium:+32 28 93 7002
Canada:+1 (647) 497-9373
Denmark:+45 32 72 03 69
Finland:+358 923 17 0556
France:+33 170 950 590
Germany:+49 892 0194 301
Ireland:+353 15 295 146
Italy:+39 0 291 29 46 27
Netherlands:+31 202 251 001
New Zealand:+64 9 913 2226
Norway:+47 21 93 37 37
Spain:+34 932 75 1230
Sweden:+46 853 527 818
Switzerland:+41 225 4599 60
United Kingdom:+44 808 178 0872
New to GoToMeeting? Get the app now and be ready when your first meeting
starts:
https://global.gotomeeting.com/install/903049133
——– Message transféré ——–
Sujet : RDA COVID 19 Legal-Ethical
Date : Wed, 29 Apr 2020 23:12:42 +0000
De : Alexander Bernier
Pour : Timea Biro , ***@***.***-Karlsruhe.de
, ***@***.***
, ***@***.***
, ***@***.***
, Mark Taylor ,
***@***.***
, ***@***.***
, ***@***.*** ,
***@***.*** ,
***@***.*** ,
***@***.*** ,
***@***.***
,
***@***.*** ,
***@***.*** , Gauthier Chassang
, ***@***.***
, ***@***.***

Copie à : Pickering J.B. , Anne
Cambon-Thomsen
Dear colleagues,
Thank you for all of your hard work and your contributions to the RDA
COVID 19 Legal-Ethical Google Document
,
and for your active participation in the Zoom call earlier this week.
Your enthusiasm to contribute, breadth of expertise, and wealth of
knowledge have been instrumental in composing such a robust document in
so little time.
I am writing to you on behalf of Anne, Brian and myself, to circulate a
number of links and documents in preparation of our Zoom meeting
tomorrow at 8:30 PM UTC. I have copied the Zoom link here:
https://global.gotomeeting.com/join/903049133
Find attached two helpful documents.
The first document is a proposed structure for the guidelines / output
of our Working Group composed by Anne, Brian and I. The document draws
from your suggestions on this Monday’s teleconference and contributions
to the shared Google Doc. The structure is by no means final, and we
look forward to further refining the proposed output in the coming days.
The second document is a draft ontology composed by Brian that proposes
tags and sub-tags for assigning Zotero labels to resources based on
their ethical and legal content in a streamlined way.
Regarding the output of this group, we propose releasing a first draft
guidance document with general and jurisdiction-neutral practical
guidance on ethico-legal aspects of COVID-19 data sharing *Friday May
8th 2020. *
Further, we propose a second document outlining a series of broader
policy recommendations for the future with no definite release date as
of yet.
The guidance you have composed thus far in the shared Google Drive will
serve as the foundation of these documents, to be refined by your
further contributions.
I would kindly ask you to sign up to the RDA COVID-19 group if you have
not yet done so, as it will make it easier for us to send relevant
documents and communications to you. You can find the relevant web link
here: https://www.rd-alliance.org/groups/rda-covid19-legal-ethical
.
If there is an ethico-legal issue, document, or other aspect of the
submission with regard to which you would be most interested in leading
the drafting and editing initiative, please e-mail Anne, Brian, and I
and let us know. We will be happy to accommodate you.
Thank you again for all of your hard work. I look forward to seeing you
on tomorrow’s Zoom discussion, and to further collaboration.
Wishing you well,
Alexander
—
Dr Anne Cambon-Thomsen
Directrice de recherche émérite au CNRS
UMR 1027, Inserm, Univ Toulouse III – Paul Sabatier http://www.u1027.inserm.fr
Plateforme sociétale genotoul http://societal.genotoul.fr/
Ambassador of the Research Data Alliance (RDA) for health sciences and
research ethics http://www.rd-alliance.org
37 allées Jules Guesde  F-31000 Toulouse
Tel : +33 (0)5 61 14 59 59 Mobile: +33 (0)6 79 41 13 48    Fax : +33
(0)5 61 14 56 23   Skype: act_pro
E-mail :

Ontology.docx

Guidelines_Structure.docx

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