[Mark Parsons]

John Wood, the other RDA co-chair, also has strong connections to Wellcome. We have been talking to David Carr. I was going to pursue that when the packet was finalized.
cheers,
-m.
On Jan 12, 2016, at 8:24 AM, Jean-Bernard Minster wrote:
Philip Bourne used to work at UCSD, and Fran Berman knows him well. I know him too, but not as well. Bernard
On Jan 12, 2016, at 00:59, Mustapha Mokrane wrote:
Dear Elaine,
Dear Claudia,
Cc. IDW Steering Group
Thank you both for the very useful information about NIH and Wellcome Trust sponsorship and for offering to help. I am sharing your emails below with the IDW Steering Group (Fran Berman, Mark Parsons, Yolanda Meleco and Hillary Hanahoe from RDA and Simon Hodson of CODATA).
NIH:
I understand from Elaine that the standard NIH route will be difficult as we would need a finalized conference programme to submit the proposal by the next deadline 12 April. We will realistically have a draft programme of SciDatCon 2016—the research conference part—by end of February after the session submissions deadline (14 Feb) and a detailed programme end of April after the papers submission deadline (17 April). The International Data Forum and RDA Plenary programmes are not dependent on a submission procedure and could be available earlier. Do you think this could work with a draft programme?
I understand also from Elaine that there might be a less formal channel with individual NIH institutes and that a proposal following this route needs to be strategically tied with relevant health sessions on the programmes of the 3 events. This seems to be doable: we could invite them to organize a session for SciDataCon but also work on presence for the International Data Forum and maybe RDA Plenary. Elaine—Do you have any specific contacts in mind?
Thanks Claudia for suggesting the name of Phil Bourne at NIH. The connection with Jane Hunter is certainly worth trying. His name came up also in RDA, so lets explore this further with the Steering Group and sponsorship group when it becomes active.
Wellcome Trust:
Claudia, thanks for sharing you contact Katherine Littler and for offering to contact her. The data sharing work of their Policy Division seems to be a good hook and we can discuss how to add the developing countries element to interest them even more. I am attaching a draft of the sponsorship package information (do not circulate!). I will send you the finalized one as soon as it is available. We would appreciate if you could initiate the contact with Katherine.
Other sponsors:
Elaine—we will distribute the sponsorship invitation and package currently being finalized to International Scientific Unions through CODATA, WDS and ICSU channels. However, more targeted approaches as you suggest with IUPAC have better chances of being successful. Would you be able to initiate the contact with IUPAC?
We have not explored Amazon or Google yet as far as I know. We will add these to our list. Claudia—contacts are welcome.
Elaine—beyond sponsorship, the idea of adding the topic of ‘data for personalized medicine’ is valuable if it can help us engage specific branches of NIH for the conference. We can have this discussion with the Programme Committees of SciDataCon and IDW (some of the people copied will be sitting on these committees)
Best regards.
Mustapha
On 12 January 2016 at 04:26, Emerson, Claudia wrote:
Hi All,
Happy new year, I hope it’s off to a good start!
I know Katherine Littler at the Wellcome Trust, I’d be happy to approach her. I would need to have the informational/ sponsorship package to pitch the case. They might be interested, since their Policy Division has done a lot of pioneering work on data sharing. Katherine would be interested if the conference program has elements of value to developing countries. I would try to persuade her to give a presentation.
On the NIH side, why don’t we approach Philip Bourne, the associate director of Data Science? http://www.nih.gov/news-events/news-releases/nih-names-dr-philip-e-bourn…. I don’t know him, but I know that he is a good friend of Jane Hunter.
Following on Elaine’s idea of approaching Amazon, why not approach Google (or Google Analytics, Google Health)? Do we have a contact at Amazon? I sat on a panel 2 years ago with a director of data analytics from Amazon – I’ll see if I can find the program, and we could reach out to that guy.
Unfortunately, Gates does not fund anything which isn’t a study (I asked my PO, just in case they’d be willing to consider this under the auspices of advancing policy and advocacy for open data).
Best / Claudia
On 11 January 2016 at 05:54, Elaine M. Faustman wrote:
Dear Mustapha,
Hello and Happy New year!
For the NIH options I am familiar and have been successful in submitting conference grants and I have included information below. Please note however that the timing is not good for this mechanism for the World Data conference.
The process is such that you first contact program officials for the Institute, then if approved you are invited to write a proposal. These are due three times per year and we missed one in early Dec., thus the next one is for April 12. Because our conference is in Sept I do not think we would get funding in time. I would have a draft proposal if needed and could help but the other item is that we have to present a finalized program . These grants can be approx $10,000 in size. There is a remote chance that we could obtain money informally from an Institute but we would need specific details on a program and perhaps have NIH as an active presenter, etc. This means also some strategic planning with the sessions to see if we can link topic with funding sources?
I do not have any contacts at the Welcome Trust.
Have you explored Amazon? I will look at their website to see if anything comes up.
Also do we have plans for our reach for the larger ICSU unions community? For example IUPAC might be interested but would need to be called to the table?
Also with the emphasis in the US on the personalized medicine initiatives — there has been lots of discussion of databases needed. This would be an ideal topic and one we might be able to approach specific branches of NIH to participate and self-fund? Should we facilitate some discussions to pull forth these ideas? esp as these are for our interest in increasing emphasis on human health databases?
NIH Conference Grant Information:
R13 general info: http://grants.nih.gov/grants/funding/r13/
R13 program announcement: http://grants.nih.gov/grants/guide/pa-files/PA-13-347.html
R13 due dates: April 12, August 12, and December 12
Example timeline of our recent IUTOX R13 conference grant submission (NOTE almost 12 month prior planning)
August 7, 2015 – Submitted final proposal to sponsor
December 7, 2016 – Scientific review meeting
December 8, 2015 – Received score
December 16, 2015 – Received summary statement
July 1, 2016 – Requested start date
October 2-6, 2016 – IUTOX International Congress of Toxicology Conference
On 1/8/2016 1:30 AM, Mustapha Mokrane wrote:
Dear Elaine,
My warmest wishes for the New Year! Yesterday, we had the first meeting regarding sponsorship for International Data Week and ScidataCon 2016. Just before the end of last year I sent you the email below to explore sponsorship opportunities in the health sector, in particular from NIH (Welcome Trust was also mentioned yesterday). Do you have any connections to these organizations or others that we could explore?
Best regards.
Mustapha
John Wood, the other RDA co-chair, also has strong connections to Wellcome. We have been talking to David Carr. I was going to pursue that when the packet was finalized.
cheers,
-m.
On Jan 12, 2016, at 8:24 AM, Jean-Bernard Minster wrote:
Philip Bourne used to work at UCSD, and Fran Berman knows him well. I know him too, but not as well. Bernard
On Jan 12, 2016, at 00:59, Mustapha Mokrane wrote:
Dear Elaine,
Dear Claudia,
Cc. IDW Steering Group
Thank you both for the very useful information about NIH and Wellcome Trust sponsorship and for offering to help. I am sharing your emails below with the IDW Steering Group (Fran Berman, Mark Parsons, Yolanda Meleco and Hillary Hanahoe from RDA and Simon Hodson of CODATA).
NIH:
I understand from Elaine that the standard NIH route will be difficult as we would need a finalized conference programme to submit the proposal by the next deadline 12 April. We will realistically have a draft programme of SciDatCon 2016—the research conference part—by end of February after the session submissions deadline (14 Feb) and a detailed programme end of April after the papers submission deadline (17 April). The International Data Forum and RDA Plenary programmes are not dependent on a submission procedure and could be available earlier. Do you think this could work with a draft programme?
I understand also from Elaine that there might be a less formal channel with individual NIH institutes and that a proposal following this route needs to be strategically tied with relevant health sessions on the programmes of the 3 events. This seems to be doable: we could invite them to organize a session for SciDataCon but also work on presence for the International Data Forum and maybe RDA Plenary. Elaine—Do you have any specific contacts in mind?
Thanks Claudia for suggesting the name of Phil Bourne at NIH. The connection with Jane Hunter is certainly worth trying. His name came up also in RDA, so lets explore this further with the Steering Group and sponsorship group when it becomes active.
Wellcome Trust:
Claudia, thanks for sharing you contact Katherine Littler and for offering to contact her. The data sharing work of their Policy Division seems to be a good hook and we can discuss how to add the developing countries element to interest them even more. I am attaching a draft of the sponsorship package information (do not circulate!). I will send you the finalized one as soon as it is available. We would appreciate if you could initiate the contact with Katherine.
Other sponsors:
Elaine—we will distribute the sponsorship invitation and package currently being finalized to International Scientific Unions through CODATA, WDS and ICSU channels. However, more targeted approaches as you suggest with IUPAC have better chances of being successful. Would you be able to initiate the contact with IUPAC?
We have not explored Amazon or Google yet as far as I know. We will add these to our list. Claudia—contacts are welcome.
Elaine—beyond sponsorship, the idea of adding the topic of ‘data for personalized medicine’ is valuable if it can help us engage specific branches of NIH for the conference. We can have this discussion with the Programme Committees of SciDataCon and IDW (some of the people copied will be sitting on these committees)
Best regards.
Mustapha
On 12 January 2016 at 04:26, Emerson, Claudia wrote:
Hi All,
Happy new year, I hope it’s off to a good start!
I know Katherine Littler at the Wellcome Trust, I’d be happy to approach her. I would need to have the informational/ sponsorship package to pitch the case. They might be interested, since their Policy Division has done a lot of pioneering work on data sharing. Katherine would be interested if the conference program has elements of value to developing countries. I would try to persuade her to give a presentation.
On the NIH side, why don’t we approach Philip Bourne, the associate director of Data Science? http://www.nih.gov/news-events/news-releases/nih-names-dr-philip-e-bourn…. I don’t know him, but I know that he is a good friend of Jane Hunter.
Following on Elaine’s idea of approaching Amazon, why not approach Google (or Google Analytics, Google Health)? Do we have a contact at Amazon? I sat on a panel 2 years ago with a director of data analytics from Amazon – I’ll see if I can find the program, and we could reach out to that guy.
Unfortunately, Gates does not fund anything which isn’t a study (I asked my PO, just in case they’d be willing to consider this under the auspices of advancing policy and advocacy for open data).
Best / Claudia
On 11 January 2016 at 05:54, Elaine M. Faustman wrote:
Dear Mustapha,
Hello and Happy New year!
For the NIH options I am familiar and have been successful in submitting conference grants and I have included information below. Please note however that the timing is not good for this mechanism for the World Data conference.
The process is such that you first contact program officials for the Institute, then if approved you are invited to write a proposal. These are due three times per year and we missed one in early Dec., thus the next one is for April 12. Because our conference is in Sept I do not think we would get funding in time. I would have a draft proposal if needed and could help but the other item is that we have to present a finalized program . These grants can be approx $10,000 in size. There is a remote chance that we could obtain money informally from an Institute but we would need specific details on a program and perhaps have NIH as an active presenter, etc. This means also some strategic planning with the sessions to see if we can link topic with funding sources?
I do not have any contacts at the Welcome Trust.
Have you explored Amazon? I will look at their website to see if anything comes up.
Also do we have plans for our reach for the larger ICSU unions community? For example IUPAC might be interested but would need to be called to the table?
Also with the emphasis in the US on the personalized medicine initiatives — there has been lots of discussion of databases needed. This would be an ideal topic and one we might be able to approach specific branches of NIH to participate and self-fund? Should we facilitate some discussions to pull forth these ideas? esp as these are for our interest in increasing emphasis on human health databases?
NIH Conference Grant Information:
R13 general info: http://grants.nih.gov/grants/funding/r13/
R13 program announcement: http://grants.nih.gov/grants/guide/pa-files/PA-13-347.html
R13 due dates: April 12, August 12, and December 12
Example timeline of our recent IUTOX R13 conference grant submission (NOTE almost 12 month prior planning)
August 7, 2015 – Submitted final proposal to sponsor
December 7, 2016 – Scientific review meeting
December 8, 2015 – Received score
December 16, 2015 – Received summary statement
July 1, 2016 – Requested start date
October 2-6, 2016 – IUTOX International Congress of Toxicology Conference
On 1/8/2016 1:30 AM, Mustapha Mokrane wrote:
Dear Elaine,
My warmest wishes for the New Year! Yesterday, we had the first meeting regarding sponsorship for International Data Week and ScidataCon 2016. Just before the end of last year I sent you the email below to explore sponsorship opportunities in the health sector, in particular from NIH (Welcome Trust was also mentioned yesterday). Do you have any connections to these organizations or others that we could explore?
Best regards.
Mustapha
—
>>> SciDataCon 2016: Advancing the Frontiers of Data in Research

Discussion