Ethics and Social Aspects of Data IG


Group details

Case Statement: 
IG Established

Ethical and social issues with respect to data archiving, sharing, and reuse cut across many of the technical and policy work of the rest of the RDA.  Such issues are complementary to but separate from legal and regulatory aspects, since technology usually outpaces law and law itself is underpinned by ethical agreements and social contracts.

Topics of interest include the kinds/types of data that can be archived and reused and under what circumstances; education of researchers, research respondents, administrators, ethics bodies; gray and difficult areas of research that create new challenges for data management  ("dangerous data", legacy data, retrospective analyses, medical humanities, wellness/lifestyle data); developing policies and practices that encourage appropriate data sharing yet protect researchers and their research respondents; obligations to and impacts on families, communities, and societies; the ethics of reuse.

Recent Activity

14 Aug 2018

Global Code of Conduct for Research in Resource-Poor Settings

Dear All,
I would like to bring the "Global Code of Conduct for Research in
Resource-Poor Settings" into your knowledge:
Jaci van Niekerk (cc ed) is kindly shared their work in the TRUST Project
which facilitated the development of the San Research Ethics Code.
They recently completed the code of conduct for research partnerships
between high-income and lower-income settings, which is endorsed by the

29 Jun 2018

Session Submission: Data Reuse Ethics : How to specify responsibilities?

Dear group members,
Please see the draft submission for the Botswana plenary. Please feel free
to add / comment.
Submission deadline is today until 29 June 2018 (17:00 UTC)
Kind regards

26 Jun 2018

AW: [ethics-social-aspects-ig] Session proposal

Thanks Oya,
our focus will be on the topic below, I will upload session tomorrow June 27th evening (German time). If anyone has ethical-social aspects that would fit in the overall theme of the session, please let me know as soon as possible.
Interest Group "Data for Development"
Proposal for a session
At the RDA Twelfth Plenary Meeting Gaborone, Botswana
Session on Capacity Building for East Africa for Data Management and Participation in International Surveys

26 Jun 2018

Session proposal

Dear all,
the deadline for submitting session proposals is in three days. There are
some suggestion as discussion topic.
Heidi brought up a discussion on code of conduct. Ingvill suggested a
cooperation with IG Data for Development to discuss ethical challenges from
the perspective of researchers from Africa .
Please communicate with me in this week, if you would like to suggest a
topic for discussion.
Kind regards

22 Jun 2018

RDA EDAS- code fo conduct

Forwarding Kate's e mail
Hi all.
Related to Heidi's code of conduct suggestion. In Australia, we have an
Australian Code for the Responsible Conduct of Research. A new version has
just been released. It is owned by Universities Australia, which represents
all of the Universities, and the two government funders of research, ARC and
NHMRC. The new Code is a short principles based document and they are
developing 'better practice guides' to go along with the Code, which are