Group Revisions

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10th WG/IG Collaboration Meeting in Gaithersburg, MD 9-11 January 2019
11th WG/IG Collaboration Meeting in Cologne, Germany 26-28 June 2019
2nd Working Group Collaboration Meeting
3rd Working Group Collaboration Meeting
4th WG/IG Collaboration Meeting
5th Plenary Program & Organizing Committees
5th RDA WG/IG Collaboration Meeting – Nottingham, UK
6th WG/IG Collaboration Meeting at NIST, Dec 12-13, 2016
7th WG/IG Collaboration Meeting, Gothenburg University., June 12 – 14, 2017
8th WG/IG Collaboration Meeting at NIST, January 10-12, 2018
9th WG/IG Collaboration Meeting in Vienna, 13-15 June 2018
Active Data Management Plans IG
Agricultural Science Indicators
Agrisemantics WG
Alignment of multilingual vocabularies in the Social Sciences and Humanities WG
Archives and Records Professionals for Research Data IG
Archiving multimedia interactive /dynamic data and projects
Array Database Assessment WG
Artificial Intelligence and Data Visitation (AIDV) WG
Big Data IG
Big Data Modelling of UN SDGs
Biodiversity Data Integration IG
Blockchain Applications in Health WG
BOF – P10 Session for Research Funders on the Topic of Open Research and Data Management
BoF Deconstructing the Data Life Cycle–Agile Curation
Bridget’s Test WG
Brokering Framework Working Group
Brokering Governance WG
Brokering IG
Building Immune Digital Twins WG
Capacity Development for Agriculture Data WG
Certification and Accreditation for Data Science Training and Education WG
Chemistry Research Data IG
CODATA/RDA Research Data Science Schools for Low and Middle Income Countries
Code of Conduct task force
Collections as Data IG
Communications
Community Capability Model IG
Community-based catalogue of requirements for trustworthy Technical Repository Service Providers Working Group (TRSPs WG)
Complex Citations Working Group
Coordinating Earth, Space, and Environmental Science Data Preservation and Scholarly Publication Processes WG
CoreTrustSeal Maintenance WG
Council
Council Engagement and Communications subcommittee
Council Finance subcommittee
Council Liaison
Council Operations and Coordination subcommittee
Council Strategy subcommittee
Council Sustainability and Funding subcommittee
CURE-FAIR WG
Data Citation WG
Data Conservation IG
Data Description Registry Interoperability (DDRI) WG
Data Discovery Paradigms IG
Data Economics IG
Data for Development IG
Data Foundation and Terminology WG
Data Foundations and Terminology IG
Data Granularity WG
Data in Context IG
Data policy standardisation and implementation IG
Data re-use, share your experiences
Data Repository Attributes WG
Data Rescue IG
Data Security and Trust WG
Data Share 2016
Data Type Registries WG & #2
Data Usage Metrics WG
Data Versioning IG
Defining Urban Data Exchange for Science IG
Development of cloud computing capacity and education in developing world research IG
Digital Humanities Workshops
Digital Practices in History and Ethnography IG
Digital Twins IG
Disciplinary Collaboration Framework IG
Discipline-specific Guidance for Data Management Plans WG
DMARC test group 1 – CHANGED
DMP Common Standards WG
Domain Repositories IG
Early Career and Engagement IG
Early Career Networking group
Educação Em Pauta
Education and Training on Handling of Research Data IG
Empirical Humanities Metadata Working Group
Engagement IG
Engaging Researchers with Data IG
Epidemiology common standard for surveillance data reporting WG
ESIP/AGU/RDA Enabling FAIR Data Coordination Group
ESIP/RDA Earth, Space, and Environmental Sciences IG
Ethics and Social Aspects of Data IG
Ethics in Agricultural (Ag) Data
Evaluation of Research IG
Exposing Data Management Plans WG
FAIR Data Maturity Model WG
FAIR Digital Object Fabric IG
FAIR for Machine Learning (FAIR4ML) IG
FAIR for Research Software (FAIR4RS) WG
FAIR for Virtual Research Environments WG
FAIR Instrument Data IG
FAIR Principles for Research Hardware
FAIRification of Genomic Annotations WG
FAIRsharing Registry: Connecting data policies, standards and databases RDA WG
Federated Identity Management IG
Fisheries Data Interoperability WG
From Observational Data to Information IG
Funders Forum
Future Directions Planning
GEDE – Group of European Data Experts in RDA
Generalist Repository Comparison Chart Management Group
Geospatial IG
Global Open Research Commons IG
Global Water Information IG
GO FAIR Liaison IG
GORC International Model WG
Harmonised terminologies and schemas for FAIR data in materials science and related domains WG
Health Data Commons GORC Profile WG
Health Data Interest Group
IDW Program Committee
IG for Surveying Open Data Practices
IGAD Community of Practice
Improving Earth and Environmental Sciences Data
International Data Week including P8
International Indigenous Data Sovereignty IG
International Materials Resource Registries WG
InteroperAble Descriptions of Observable Property Terminology WG (I-ADOPT WG)
Libraries for Research Data IG
Life Science Data Infrastructures IG
Linguistics Data IG
Long tail of research data IG
Make Data Count
Mapping the Landscape IG
Marine Data Harmonization IG
Membership Task Force Discussion Group
Metabolomics Data Interoperability IG
Metadata IG
Metadata Standards Catalog WG
Metadata Standards Directory WG
National Data Services IG
National PID Strategies Interest Group
National PID Strategies WG
Neuroimaging Data WG
On-Farm Data Sharing (OFDS) WG
Open Science Graphs for FAIR Data IG
Organisational Advisory Board (private)
Persistent Identification of Instruments WG
Physical Samples and Collections in the Research Data Ecosystem IG
PID IG
PID Information Types WG
PID Kernel Information Profile Management WG
Plenary 13th – BoF Sessions
Plenary 3 Organising Committee
Plenary 6 Organisation
Plenary 7 Organisation
Practical Policy WG
Preservation e-Infrastructure IG
Preservation Tools, Techniques, and Policies
Preserving Scientific Annotation WG
Professionalising Data Stewardship IG
Provenance Patterns WG
Psychological Data IG
Public Health Graph WG
Public Sector Information BoF
Publisher Guidance for Availability Statements in Scholarly Publications WG
Quality of Urban Life IG
Raising FAIRness in health data and health research performing organisations (HRPOs) WG
RDA / CODATA Data Systems, Tools, and Services for Crisis Situations WG
RDA / TDWG Metadata Standards for attribution of physical and digital collections stewardship
RDA & ReSA: Policies in Research Organisations for Research Software (PRO4RS)
RDA 2nd Plenary
RDA 3rd Plenary
RDA Communities of Practice
RDA Coordination Group
RDA Council Private
RDA COVID-19
RDA COVID-19 Epidemiology
RDA COVID19 Coordination
RDA COVID19-Legal-Ethical
RDA Europe Ambassadors
RDA Europe Industry Advisory Board
RDA Europe Science Workshop
RDA Europe Synchronisation Assembly (SyA)
RDA Europe Task Force on Sustainability
RDA for the Sustainable Development Goals IG
RDA in Asia
RDA in Australasia
RDA in Austria
RDA in Brazil
RDA in Bulgaria
RDA in Canada
RDA in Costa Rica
RDA in Croatia
RDA in Czech Republic
RDA in Denmark
RDA in Ecuador
RDA in Estonia
RDA in Finland
RDA in France
RDA in Germany
RDA in Greece
RDA in Hungary
RDA in Ireland
RDA in Italy
RDA in Lithuania
RDA in Netherlands
RDA in Norway
RDA in Norway Curation Network
RDA in Portugal
RDA in Romania
RDA in Slovenia
RDA in South Eastern Europe
RDA in Spain
RDA in Sweden
RDA in the Americas
RDA in the United States
RDA in United Kingdom
RDA Management
RDA Organisational Advisory Board Task Force (OAB TF)
RDA Organisational Assembly
RDA Outputs and IP Task Force
RDA Outputs Discoverability Group
RDA Privacy Implications of Research Data Sets IG
RDA Regional Advisory Board
RDA Regional Engagement Discussion Group
RDA Regions
RDA Secretariat
RDA Technical Advisory Board (TAB)
RDA Testbed List
RDA Web Focus Group
RDA-COVID19-Clinical
RDA-COVID19-Community-participation
RDA-COVID19-Omics
RDA-COVID19-Social-Sciences
RDA-COVID19-Software
RDA-OfR Creating a Multi-omics Metadata Schema Standard Reporting Matrix WG
RDA-OfR Mapping the landscape of digital research tools WG
RDA/CODATA Legal Interoperability IG
RDA/CODATA Materials Data, Infrastructure & Interoperability IG
RDA/CODATA Summer Schools in Data Science and Cloud Computing in the Developing World WG
RDA/EU – Communication, Marketing, Impact & Sustainability
RDA/FORCE11 Software Source Code Identification WG
RDA/US Adoption Committee
RDA/US Communications
RDA/US Leadership
RDA/US Science Meeting
RDA/WDS Certification of Digital Repositories IG
RDA/WDS Publishing Data Bibliometrics WG
RDA/WDS Publishing Data Cost Recovery for Data Centres IG
RDA/WDS Publishing Data IG
RDA/WDS Publishing Data Services WG
RDA/WDS Publishing Data Workflows WG
RDA/WDS Scholarly Link Exchange (Scholix) WG
RDA/WDS TRUST Principles Outreach and Adoption Working Group
Repository Core Description WG
Repository Platforms for Research Data IG
Reproducibility IG
Reproducible Health Data Services WG
Research Data Architectures in Research Institutions IG
Research Data Collections WG
Research Data Management in Engineering IG
Research data needs of the Photon and Neutron Science community IG
Research Data Provenance IG
Research Data Repository Interoperability WG
Research Funders and Stakeholders on Open Research and Data Management Policies and Practices IG
Research Metadata Schemas WG
Rice Data Interoperability WG
Salmon Research and Monitoring Interest Group
Science communication for research data
Scientific Knowledge Graphs – Interoperability Framework (SKG-IF) WG
Sensitive Data Interest Group
Service Management IG
Sharing Rewards and Credit (SHARC) IG
Skills and training curriculums to support FAIR research software IG
Small Uncrewed Aircraft and Autonomous Platforms Data Working Group
Small Unmanned Aircraft Systems’ Data IG
Social and Economic Statistics
Social Dynamics of Data Interoperability IG
Social Science Research Data IG
Software Source Code IG
Standardisation of Data Categories and Codes WG
Storage Service Definitions WG
Structural Biology IG
Structure of Information
Sustainability of eResearch / Cyberinfrastructure
Swiss Energy Data
Synthetic (micro)biology, biosafety and biosecurity: policy compliance – ABS Regulation, CBD, The Nagoya & Kuala Lumpur, and Cartagena Protocols
Task Force on Gender Balance
Teaching TDM on Education and Skill Development WG
Test – Stefanie’s CoP 2
Test – Stefanie’s CoP 3
Test Group
Toxicogenomics Interoperability IG
Understanding and Capturing the Uptake of Digital Research Infrastructure IG
UPC Code for Data IG
Use Cases group
Value and Engagement for Organisational Members
Virtual Research Environment IG (VRE-IG)
Vocabulary Services IG
WDS/RDA Assessment of Data Fitness for Use WG
Weather, climate and air quality IG
Wheat Data Interoperability WG
Wicket Test Buddy Boss
Wind Energy Community Standards WG
Working and Interest Group Chairs
Working Group Chairs
Working Group Process Task Force
Working with PIDs in Tools IG

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Raising FAIRness in health data and health research performing organisations (HRPOs) WG

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Working Group

Raising FAIRness in health data and health research performing organisations (HRPOs) WG rev-002

Co-Chair(s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj

Reuse of health and clinical research data (including social care, and hereafter referred to as health research data) has major restrictions when compared to other research data in the biomedical domain. This primarily pertains to the concerns imposed by privacy, sensitivity and ethical issues raised by making data freely available. Meanwhile, research data management (RDM)…

May 13, 2024

Working Group

Raising FAIRness in health data and health research performing organisations (HRPOs) WG

Co-Chair(s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj

Adoption and application of the FAIR principles to research data has grown significantly in the few years that they have existed. They have been embraced in many quarters and have paved the way to creating a level playing field for data reuse. Nevertheless, they also pose challenges in some areas of research where reuse may…

March 27, 2024

Case Statements, Agreements & Charters