The Value of RDA for COVID-19

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13 July 2020 1346 reads

Under public health emergencies, and particularly the COVID19 pandemic, it is fundamental that data is shared in both a timely and an accurate manner. This coupled with the harmonisation of the many diverse data infrastructures is, now more than ever, imperative to share preliminary data and results early and often. It is clear that open research data is a key component to pandemic preparedness and response.

In late March, RDA received a direct request from one of its funders, the European Commission, to create global guidelines and recommendations for data sharing under COVID-19 circumstances. Over 600 data professionals and domain experts signed up and began work in early April 2020. They have produced a rich set of detailed guidelines to help researchers and data stewards follow best practices to maximise the efficiency of their work, and to act as a blueprint for future emergencies; coupled with recommendations to help policymakers and funders to maximise timely, quality data sharing and appropriate responses in such health emergencies.

On 30 June 2020, RDA published the final version of the RDA COVID-19 Recommendations and Guidelines on data sharing covering four research areas – clinical data, omics practices, epidemiology and social sciences - complemented by overarching areas focusing on legal and ethical considerations, research software, community participation and indigenous data.


The Outputs

The COVID-19 WG, from April 1st through June 30th, 2020, created more than five releases of the recommendations and guidelines, leading to the final endorsed version, "RDA COVID-19 Recommendations and Guidelines for Data Sharing," with ongoing efforts to add and review materials.

Citation:  RDA COVID-19 Working Group. Recommendations and Guidelines on data sharing. Research Data Alliance, 2020. DOI: https://doi.org/10.15497/rda00052


Resources


Joint Statements


RDA FOR COVID-19 Events

A series of weekly "RDA COVID-19 Update Webinar" occurred almost every Tuesday between April and June 2020 and provided updates on the overarching COVID-19, Legal and Ethical, Research Software, Community Participation Working Groups, Indigenous Data contribution, and the four research themes (clinical, omics, epidemiology, social sciences), along with an opportunity for members to ask questions. Recordings and presentations from these sessions are posted on the Events meeting links.

Upcoming events include:

Past events include:


RDA for COVID-19 Profiles

The following are a series of profiles of RDA COVID19 working group contributors generated by regional programmes as a means of highlighting the regional contribution to this global effort.

 

My biggest takeaway from this experience is that there are no problems, only solutions. We, humanity, can find and build those solutions that will get us past COVID-19 and prevent future such disasters. The question is, will we do it.

Claire Austin: My experience as a participant in the RDA COVID-19 Working Group
 


Pre-COVID, this type of report would have typically taken RDA years to produce. The urgency of this situation made it possible to achieve what would have previously been considered impossible. Furthermore, it was done entirely virtually. This is unprecedented for RDA, which has always relied on face-to-face meetings to progress its work. I think we've realised how much we can achieve even by meeting virtually.

Kheeran Dharmawardena: My experience as a participant in the RDA COVID-19 Working Group


The geographical as well domain diversity of the group’s expertise is well reflected in the document. A global pandemic impacts everyone; the response can’t be localised. An international initiative such as RDA demonstrates the power of a global community, knowledge and connectivity. 

Priyanka Pillai: My experience as a participant in the RDA-COVID19 Working Group

 


RDA for COVID-19 in the news

News & articles

Press clippings & sharing

 


The Working Group & subgroups

The main COVID-19 WG: for overall updates on the initiative, including announcements regarding the update webinars.

The COVID-19 sub-group by expertise and interest:

  1. Clinical
  2. Omics
  3. Epidemiology
  4. Social Sciences
  5. Community Participation
  6. Indigenous Data
  7. Legal and Ethical
  8. Software

The RDA COVID-19 activities were conducted under the RDA guiding principles of Openness, Consensus, Balance, Harmonisation, Community-driven, Non-profit and Technology-neutral. The results and outputs are open to all.