Dr Anne Cambon-Thomsen
Professional Title: Researcher
Other: Medical doctor
Primary domain: Human genetics and ethics
Organization name: CNRS, Inserm and University Toulouse III Paul Sabatier
Organization type: Academia/Research
City / Country: Toulouse - France
Anne Cambon-Thomsen, MD, is Director of Research at CNRS (French national centre for scientific research) and emeritus since 2015, working in a research Unit on epidemiology and public health at Inserm (National Institute for Health and Medical Research), and University of Toulouse III Paul Sabatier, Faculty of Medicine Toulouse, France. Specialist in human immunogenetics, with a masters in human biology, a degree in health ethics, she works in an interdisciplinary research team on bioethics and innovation in health, involving human and social sciences as well as health sciences www.u1027.inserm.fr. She teaches in human genetics, public health and bioethics. After a postdoc in Copenhagen (Denmark), she directed two research units in immunogenetics, immunopathology and population genetics, in Toulouse (France) between 1985 and 1997. After many contributions to the study of human genetic variation in populations and diseases and to transplantation immunogenetics, she worked and published in recent years on societal aspects of biobanks, biotherapies, genetic testing, biomarkers, high throughput technologies, data sharing, and biotechnologies. Her work with and on biobanks and bioresources and afferent research policies led her to launch the BRIF (Bioresource research impact factor) international initiative in 2010 http://www.gigasciencejournal.com/content/2/1/7 . She also created the “societal platform" of the Toulouse-Midi-Pyrénées Genopole, Genotoul http://societal.genotoul.fr/ and is the co-ordinator and co-director of the Common Service on ethical, legal and social implications (ELSI) of BBMRI-ERIC – the Biobanks and biomolecular research infrastructure European consortium http://bbmri-eric.eu/. Leader of the ELSI work on several European projects dealing with biobanks, genetic data, high throughput technologies, she has been President of the scientific council of the French birth cohort ELFE, President of the French Society of Human Genetics, member of the board of the French Foundation for rare diseases, and of several scientific advisory boards and participates in numerous science in society actions. Former member of the CCNE (French national advisory bioethics committee), of the European Group on ethics of science and new technologies (EGE) and of the Public and professional policy committee of the European society of human genetics, past-Chair of the Life sciences operational ethics committee in CNRS and former and expert at the Ethics committee of CNRS (COMETS), of the ethics committee of the Toulouse White Biotechnology project (TWB), she is presently Chair of the deontology and ethics committee of the National Cancer Institute in France. She is also member of other committees: ethics and policy committee of the International Cancer Genome Consortium (ICGC), ethics and deontology committee of the French blood institute (EFS, Etablissement français du sang). She has successfully presented the Toulouse bid for organizing the EuroScience Open Forum 2018 (ESOF 2018) that will give the label of European City of Science to this town and granting her the title of ESOF Champion. ESOF 2018 (Toulouse 9-14/7/2018) is operating under the motto "Sharing science: towards new horizons" (www.esof.eu) and has an open call for sessions until June 2017.