status: Recognised & Endorsed

Chair (s): Anne Cambon-Thomsen

Group Email: [group_email]

Secretariat Liaison: Bridget Walker


This is the subgroup of the RDA-COVID-19 working group focusing on Legal and Ethical aspects.

 

Co-chair assigned:  Anne Cambon-Thomsen

Moderator(s):  Alexander Bernier, John Brian Pickering,

Email:  rda-covid19-legal-ethical@rda-groups.org

 

Useful Information for RDA COVID-19 Legal and Ethical Subgroup

 

Legal and Ethical subgroup priorities:

  • understand any cross-cutting ethical and legal issues in the identification, curation and sharing of (personal) data
  • provide guidance to researchers and policy makers in terms of best practice ethical and legal data exploitation
  • provide support to researchers wanting to exploit available data resources
  • provide support to data providers wanting to publicise and share their data

Our next meeting is Wednesday 13th May 11:00 to 12:00 UTC; please join us via this link .

 

To provide feedback on the "RDA COVID-19 Guidelines and Recommendations":

The current draft of the "RDA COVID-19 Guidelines and Recommendations" can be found in the Outputs section of the main COVID-19 WG webpage; be sure to select the most current version that is attached for review, and provide comments using the "Add new comment" link below the attachments.

Posts

26
August
2020

Link for today's GoToMeeting

by John Brian Pickering

https://global.gotomeeting.com/join/852782301 Attached is also the chatlog from last week's call. Brian
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19
August
2020

Legal & Ethics

by John Brian Pickering

This is the GTM link: https://global.gotomeeting.com/join/852782301 This is the current working document: https://docs.google.com/document/d/1hwh-KTeu70NJIn-Z4tfH08AspyN0_m923uh9... This is a start on a "Social Science" version: https://docs.google.com/document/d/1ZbkQBzuPVrD2GS0OUCB4rh1vqYvV5N0B9Qmd...
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12
August
2020

If anyone is about and wants a call, link enclosed

by John Brian Pickering

Connection details: https://global.gotomeeting.com/join/852782301
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30
July
2020

FW: RDA attribution

by John Brian Pickering

Dear All, FYI – should you need to acknowledge RDA on papers. Brian - Show quoted text -From: Mary O'Brien Uhlmansiek <***@***.***-foundation.org> Sent: 29 July 2020 22:43 To: Pickering J.B. <***@***.***> Subject: Re: RDA attribution Brian, Here’s the template language I found on the RDA website: “This work was developed as part of the Research Data Alliance (RDA) ‘WG/IG’ entitled ‘long name (short name)’, and we acknowledge the support provided by the RDA community and structures.”
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29
July
2020

RDA COVID-19 Revised GTM link

by John Brian Pickering

Dear All, I've had to update the meeting link. Sorry https://global.gotomeeting.com/join/852782301
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29
July
2020

RDA COVID - Legal & Ethics

by John Brian Pickering

Dear All, For those attending today at 11:00 UTC, the meeting link: https://global.gotomeeting.com/join/795034709 and the rolling notes are https://docs.google.com/document/d/1hwh-KTeu70NJIn-Z4tfH08AspyN0_m923uh9... Brian
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22
July
2020

RDA COVID 19 - Legal and Ethics - Yes, today's call is happening...

by John Brian Pickering

Dear All, I will open up the link ( https://global.gotomeeting.com/join/795034709) at 11:00 UTC as normal. Brian
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14
July
2020

RDA COVID-19 Legal & Ethics WG

by John Brian Pickering

Dear All, Tomorrow's meeting: https://global.gotomeeting.com/join/795034709 Rolling minutes are: https://docs.google.com/document/d/1hwh-KTeu70NJIn-Z4tfH08AspyN0_m923uh9... , with links to the previous Common Document and a strawman document. Apologies, I have not had time for anything substantial this week Brian
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08
July
2020

RDA COVID 19: Legal & Ethical WG - follow-on

by John Brian Pickering

Dear All, Our call today is 11:00 UTC, via the new GTM session; our rolling agenda has nothing in it as yet. Both the common document and the summary of what we discussed last week are both available: I don't know why the GDoc link didn't give edit access, sorry, but hopefully it will work now for those who want it. Brian
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07
July
2020

Genomic data and the GDPR

by Simon Parker

Dear all, I mentioned at our last meeting about working being conducted in the UK to explore the use of genomic data with respect to the GDPR. I had been liaising with the team involved in the work and they were kind enough to notify me yesterday that their report is now available for anyone to read. There is also a two page policy document here, the full report is here, the executive summary is here, and their website is here. There are a couple of discussion papers on the website too.
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