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30
April
2020
AW: [rda-covid19-clinical] April 29 RDA Clinical Subgroup meeting on COVID-19
Dear all, yesterday in the telco in the clinical subgroup the topic of consent was mentioned. I found an opinion of the European Data Protection Board (where the data protection authorities of the EU Member States and the European Data Protection Supervisor are assembled). The opinion discusses issues related to consent and more general the legal basis for processing of personal data in the framework of clinical trials for medicinal products.1 | Add new comment
30
April
2020
FW: [rda-covid19-clinical] April 29 RDA Clinical Subgroup meeting on COVID-19
Dear Anne, Could you please help Katharina with the login information? Thanks, Martin ------------------------------------------ Martin Golebiewski HITS gGmbH Schloss-Wolfsbrunnenweg 35 69118 Heidelberg Germany phone +49 6221 533 281 fax +49 6221 533 298 email ***@***.***-its.org http://www.h-its.org _________________________________________________ Amtsgericht Mannheim / HRB 3374461 | Add new comment
28
April
2020
April 29 RDA Clinical Subgroup meeting on COVID-19
by Dawei Lin
Hi Subgroup, Here is the agenda for tomorrow’s call. 1. Updates from RDA-COVID-19 WG call on Tuesday (April 28) (Dawei Lin) 2. Ideas to improve the clarity of the clinical group’s recommendations (two-page summary) and plans to generate a refined document by April 30 (Andrea Jackson-Dipina) 3. Solicit recommendations on consent issues and sharing imaging and immunological data. If you know somebody would like to contribute to those three areas, please let the moderators know and invite them to join the call tomorrow or join the Subgroup.0 | Add new comment
24
April
2020
Two Page: Clinical Subgroup recommendations
by Dawei Lin
Hi Subgroup, Here is a draft of the two-page summary of our current recommendations. It mainly covers the recommendations on clinical trials and trustworthy data resources, which were discussed at the weekly calls. Please feel free to comment on the current content. The purpose of this two-pager is to generate an initial set of recommendations for all COVID-19 subgroups. There still time to add new ones after that. So please continue to contribute ideas to the recommendations and WG Resources. Thank you,0 | Add new comment
23
April
2020
Re: [rda-covid19-clinical] Minutes Clinical Sub-Group Meeting 22 April 1.00 pm UTC
> Dear RDA COVID-19 Clinical Subgroup members, > > Thanks to all the members who attended and contributed to our RDA > COVID-19 Clinical Subgroup weekly meeting on Wednesday 22 April 2020 > at 1.00 pm UTC > > You will find at the link below the Agenda, participants, notes and > action points. We would like to be able to rely as much as possible on > your contributions as we are sprinting towards the first output of the > working group this Friday 24 April; let'skeep the momentum. We are0 | Add new comment
21
April
2020
Clinical Sub-Group Meeting 22 April 1.00 pm UTC - RDA-COVID19
Dear RDA COVID-19 Clinical Subgroup members, As agreed last week we have our RDA COVID-19 Clinical Subgroup weekly meeting on Wednesday 22 April 2020 at 1.00 pm UTC, Thank you very much to those who documented the list of resources (zotero or sub-group google file for resources), the scope and the possible recommendations. You can continue! We are sprinting towards the first output of the working group this Friday 24 April and your contribution is highly appreciated. The documents are in the sub-group google folder0 | Add new comment
19
April
2020
Recommendations and resources needed
by Dawei Lin
Dear RDA COVID-19 Clinical subgroup, We appreciate all the discussions and suggestions so far, especially for defining the scope. Our sub-group's tentative goals are 1. Generate recommendations; 2. Compile a list of references related to COVID clinical resources, and 3. make a decision tree to help stakeholders to use references and recommendations towards better sharing. The stakeholders are typically researchers (producing and/or using data), policymakers, funders, healthcare providers.0 | Add new comment
15
April
2020
Update on the RDA COVID-19 Clinical Subgroup kickoff meeting
by Dawei Lin
Dear RDA COVID-19 Clinical Subgroup members,0 | Add new comment
15
April
2020
Making your work visible
Dear members of the RDA-COVID19 Clinical Sub Group The RDA Secretariat would like to support you in increasing the visibility of the work you are doing. I have set up a Google doc - news pieces - in the Clinical main folder where we invite you to add any updates, milestones or links to relevant information. Please keep the detail brief as we will be using mainly Twitter. Thank you Bridget Bridget Walker Office Manager Research Data Alliance Tel: +44-07307000352, +39-34053369560 | Add new comment
15
April
2020
webinar link, please
by Galia Weidl
Hi, can you send me the webinar link. I cannot find it. Thanks, Galia Weidl [https://ipmcdn.avast.com/images/icons/icon-envelope-tick-round-orange-an... Virenfrei. www.avast.com1 | Add new comment