status: Recognised & Endorsed
Chair (s): Joerg Geiger, Freyja van den Boom
Group Email: [group_email]
Secretariat Liaison: enquiries@rd-alliance.org
This IG starter out as a Working Group, to explore issues related to scientific research data sets that contains human subject information, as well as related datasets that have the potential to be combined in a way that can expose private information. The goal of the group is to develop a framework for how researchers and repositories should appropriately manage human-subject datasets, to develop a metadata set to describe the privacy-related aspects of research datasets, and to build awareness of the privacy implications of research data sharing. While privacy is related to the ethical, legal and data publishing issues surrounding data management of which privacy is a part, this working group is focused specifically on privacy-related concerns.
After submitting their Case Statement, the group decided to become an Interest Group, to enable even broader discussion.
Posts
Workshop "RDA for Health and Medical Data"
by Joerg Geiger
Dear friends, RDA has organized a workshop on Medical Data which will take place on Wednesday 26 April 2023 at 11:00 UTC via Zoom.0 | Add new comment
RDA 20th Plenary - Notification of Acceptance
Dear Chairs of the RDA Privacy Implications of Research Data Sets IG Your RDA 20th Plenary (P20) session application titled Privacy issues in research data: Setting aims and objectives has been approved. Please take into consideration the feedback below that should be included in a revised version of your application, highlighting the modifications, by Tuesday 13 December 2022, close of business:0 | Add new comment
Invitation to participate in 'A Decade of Data: 10 Years of the RDA' events and activities
by Connie Clare
Good day, The RDA Secretariat would like to invite the RDA Privacy Implications of Research Data Sets IG to participate in ‘A Decade of Data’: Celebrating 10 Years of the Research Data Alliance’. 10 months to celebrate 10 years of the RDA0 | Add new comment
meeting 2022-09-05 12:00 UTC
by Joerg Geiger
Dear colleagues, this is just a gentle reminder of the meeting on Monday September 5, 2022 at 12:00 UTC (please check for your local time zone and daylight saving if appropriate). -- PD Dr. rer. nat. Joerg Geiger Interdisciplinary Bank of Biological Materials and Data Wuerzburg, Germany0 | Add new comment
meeting 2022-09-05 12:00 UTC
by Joerg Geiger
Dear colleagues, this is just a gentle reminder of the meeting on Monday September 5, 2022 at 12:00 UTC (please check for your local time zone and daylight saving if appropriate). Join Zoom Meeting https://uni-wuerzburg.zoom.us/j/68643624613?pwd=RlFHUEhMWi8wRk1Kcmt2TWhh... Meeting ID: 686 4362 4613 Password: 239295 See you then Best wishes Joerg -- PD Dr. rer. nat. Joerg Geiger0 | Add new comment
[RDA Privacy Implications of Research Data Sets IG] first regular meeting
by Joerg Geiger
Dear friends and colleagues, at the 19th RDA plenary we decided to meet in future on a regular basis. We scheduled the first meeting for September 5, 2022 at 12:00h UTC (please check for your local time zone/daylight saving). Your are kindly invited to this meeting. Please use the meeting information below to access the meeting. Best wishes Joerg Draft Agenda: - short introduction round - discussion on scope and objectives of the group - planning of future meetings Topic: RDA privacy IG0 | Add new comment
RDA Plenary 19 Draft Programme Now Available
Dear Group Chairs, The RDA 19th Plenary draft programme is now available: https://www.rd-alliance.org/rdas-19th-plenary-programme-0. Please note that the Plenary programme is a part of the International Data Week programme that can be accessed at https://www.rd-alliance.org/international-data-week-2022-programme.0 | Add new comment
Subject: RDA Plenary 19 as a part of IDW 2022 - Notification of Acceptance
Dear Chairs of the RDA Privacy Implications of Research Data Sets IG, The review of your session application for the RDA Plenary 19 (P19) is complete and your application titled Privacy Ensured Research: Data Sharing and Reuse has been accepted. Please consider this your official notification of acceptance. Congratulations!0 | Add new comment
P19 session proposals submissions
by Irina Hope
Dear group members, Thank you for submitting your session proposal for the Plenary 19 titled ‘Privacy Ensured Research: Data Sharing and Reuse’. A review of all submitted proposals is now underway. Notifications of sessions acceptance will be sent out by Thursday, 24th March. Please contact the RDA Secretariat at enquiries@rd-alliance.org with any questions or concerns you may have regarding your submission. Kind regards, RDA Secretariat0 | Add new comment
Terms/definitions for the Sensitive Data & Privacy Implications of Research Data Sets IGs
by Joerg Geiger
Dear colleagues, Our best wishes for the new year go to you. Thank you for your contributions to the group and the fruitful discussions at the plenary. We endeavor to revitalize the Privacy IG and in this regard we aim at resuming projects fundamental to this IG.0 | Add new comment