status: Recognised & Endorsed

Chair (s): Joerg Geiger, Freyja van den Boom

Group Email: [group_email]

Secretariat Liaison:

This IG starter out as a Working Group, to explore issues related to scientific research data sets that contains human subject information, as well as related datasets that have the potential to be combined in a way that can expose private information. The goal of the group is to develop a framework for how researchers and repositories should appropriately manage human-subject datasets, to develop a metadata set to describe the privacy-related aspects of research datasets, and to build awareness of the privacy implications of research data sharing. While privacy is related to the ethical, legal and data publishing issues surrounding data management of which privacy is a part, this working group is focused specifically on privacy-related concerns.

After submitting their Case Statement, the group decided to become an Interest Group, to enable even broader discussion.

File Repository


Research Data Centers: Enabling Access to Sensitive Social and Economical Data

by Nettie Lagace

Research Data Centers: Enabling Access to Sensitive Social and Economical Data
Thomas Runge, German Data Forum

PDF icon RungeGermanDataForum_eng_RDA_P9.pdf1 MB

Slide deck from WG Meeting at RDA Plenery in Tokyo

by Todd Carpenter

Attached are the slides that were presented during the first working group meeting during the RDA Plenary in Tokyo.

PDF icon 16-0302 RDA-NISO Data & Privacy Implications Tokyo.pdf195.54 KB

MP3 recording, NISO-RDA Research Data Privacy WG, February 8, 2016

by Nettie Lagace

As described at, we held a planning call on Monday, February 8, 2016 to disc

Audio icon NISO-RDA Research Data Privacy - Feb 8, 2016.mp36.81 MB