IG Health Data - RDA 11th Plenary meeting

Meeting title

Reproducible Data Service Workflows, Diverging Trends in Health Data Protection, Grand Challenges in Biomedical Data Ecosystem (Remote Access Instructions)

Collaborative session notes:


Short introduction describing the scope of the group and if any previous activities

The Health Data Interest Group (HDIG) addresses the broad issues relating to the usage of health data. It was officially instituted in 2016 following successful BoF Sessions during the 6th RDA Plenary Meeting in Paris and the 7th RDA Plenary Meeting in Tokyo. It became a mature RDA component, actively involved in the 8th RDA Plenary Meeting in Denver with a session “Health Data Privacy & Security issues”, at P9 in Barcelona with a session focused on “Meaningful health data for research and for industry” and at P10 in Montreal with a session on “Health data mapping and diverging trends in health data protection”. 
All sessions were well-attended and included researchers and professionals from diverse backgrounds. As the Health Data IG is the only RDA group focusing on the intricacies of Health Data, discussions included varying topics such as issues surrounding reproducibility of health data research as well as privacy and security issues in Healthcare. The HDIG is now looking forward to the next plenary assembly at the RDA 11 Plenary in Berlin 2018 to continue its work on codifying workflows and discussing emerging needs of health data.

Additional links to informative material related to the group

• Group page: https://rd-alliance.org/groups/health-data.html
• Case statement: https://www.rd-alliance.org/group/health-data/case-statement/health-data...
• P10 HDIG Session Presentations: https://www.rd-alliance.org/hdig-p10-montreal-presentations 
• RDA Adoption and Training Guide for Reproducible Data Service Workflows https://docs.google.com/document/d/1qQD-E8D-Qno8y_XrSOQ2O6sZEaT2_2r3pIMj...

Meeting objectives

The meeting aims at presenting First results on RDA Adoption and Training Guide for Reproducible Data Service Workflows, Diverging Trends in Health Data Protection, and Grand Challenges in the Biomedical Data Ecosystem. More in detail:
1) Present and Discuss the current work on “RDA Adoption and Training Guide for Reproducible Data Service Workflows” and see ways in which it can be shared within the RDA community
2) Present a first draft report on the GDPR coming into force in May 2018, with regard to its implications for the health sector, focusing specifically on the issues of “anonymization, pseudonymization and encryption of Health Data”, and taking into account also current developments in other geographical areas. 
3) Define grand data challenges in the biomedical data ecosystem to inspire and drive innovations

Meeting agenda

*Brief introduction to the group
*Guest speakers
*RDA Adoption and Training Guide for Reproducible Data Service Workflows:
**Presentation of the first/main results
**Current standing
**Next steps
* Diverging Trends in Health data protection:
**Present and gain feedback on “anonymization, pseudonymization and encryption of Health Data” within the GDPR and international comparison.
* Discuss future activities in defining the grand challenges in the biomedical data ecosystem

Target audience:

For this open session, we invite Clinicians wanting to use data technology to improve their practice, Biomedical researchers using data-driven analytical techniques in their research life-cycle, Healthcare Data Scientists dealing with data mining, machine learning, physiological modelling and image processing technologies and the data these produce, HPC and distributed computing experts, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, in silico modelling, testing and clinical trial experts, as well as participants form other related WG/IG.

Co-chairs: Edwin Morley-Fletcher

Type of meeting: Working meeting

Group maturity: more than 18 months

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