IG Health Data - RDA 11th Plenary meeting

You are here

Meeting title

Reproducible Data Service Workflows, Diverging Trends in Health Data Protection, Grand Challenges in Biomedical Data Ecosystem (Remote Access Instructions)

Collaborative session notes:

https://docs.google.com/document/d/1AKpc11AWsudXYZULA6bQFT6Tpwx1aWqUuGFM...

Short introduction describing the scope of the group and if any previous activities

The Health Data Interest Group (HDIG) addresses the broad issues relating to the usage of health data. It was officially instituted in 2016 following successful BoF Sessions during the 6th RDA Plenary Meeting in Paris and the 7th RDA Plenary Meeting in Tokyo. It became a mature RDA component, actively involved in the 8th RDA Plenary Meeting in Denver with a session “Health Data Privacy & Security issues”, at P9 in Barcelona with a session focused on “Meaningful health data for research and for industry” and at P10 in Montreal with a session on “Health data mapping and diverging trends in health data protection”. 
All sessions were well-attended and included researchers and professionals from diverse backgrounds. As the Health Data IG is the only RDA group focusing on the intricacies of Health Data, discussions included varying topics such as issues surrounding reproducibility of health data research as well as privacy and security issues in Healthcare. The HDIG is now looking forward to the next plenary assembly at the RDA 11 Plenary in Berlin 2018 to continue its work on codifying workflows and discussing emerging needs of health data.

Additional links to informative material related to the group

• Group page: https://rd-alliance.org/groups/health-data.html
• Case statement: https://www.rd-alliance.org/group/health-data/case-statement/health-data...
• P10 HDIG Session Presentations: https://www.rd-alliance.org/hdig-p10-montreal-presentations 
• RDA Adoption and Training Guide for Reproducible Data Service Workflows https://docs.google.com/document/d/1qQD-E8D-Qno8y_XrSOQ2O6sZEaT2_2r3pIMj...

Meeting objectives

The meeting aims at presenting First results on RDA Adoption and Training Guide for Reproducible Data Service Workflows, Diverging Trends in Health Data Protection, and Grand Challenges in the Biomedical Data Ecosystem. More in detail:
1) Present and Discuss the current work on “RDA Adoption and Training Guide for Reproducible Data Service Workflows” and see ways in which it can be shared within the RDA community
2) Present a first draft report on the GDPR coming into force in May 2018, with regard to its implications for the health sector, focusing specifically on the issues of “anonymization, pseudonymization and encryption of Health Data”, and taking into account also current developments in other geographical areas. 
3) Define grand data challenges in the biomedical data ecosystem to inspire and drive innovations

Meeting agenda

*Brief introduction to the group
*Guest speakers
*RDA Adoption and Training Guide for Reproducible Data Service Workflows:
**Presentation of the first/main results
**Current standing
**Next steps
* Diverging Trends in Health data protection:
**Present and gain feedback on “anonymization, pseudonymization and encryption of Health Data” within the GDPR and international comparison.
* Discuss future activities in defining the grand challenges in the biomedical data ecosystem

Target audience:

For this open session, we invite Clinicians wanting to use data technology to improve their practice, Biomedical researchers using data-driven analytical techniques in their research life-cycle, Healthcare Data Scientists dealing with data mining, machine learning, physiological modelling and image processing technologies and the data these produce, HPC and distributed computing experts, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, in silico modelling, testing and clinical trial experts, as well as participants form other related WG/IG.

Co-chairs: Edwin Morley-Fletcher

Type of meeting: Working meeting

Group maturity: more than 18 months

Remote Access Instructions:

Please join my meeting from your computer, tablet or smartphone.
https://global.gotomeeting.com/join/419048773

You can also dial in using your phone.

Access Code: 419-048-773

Australia: +61 2 8355 1050
Austria: +43 7 2081 5427
Belgium: +32 28 93 7018
Canada: +1 (647) 497-9391
Denmark: +45 32 72 03 82
Finland: +358 972 52 2974
France: +33 157 329 484
Germany: +49 692 5736 7317
Ireland: +353 15 621 586
Italy: +39 0 291 29 46 30
Netherlands: +31 207 941 377
New Zealand: +64 9 280 6302
Norway: +47 23 16 23 30
Spain: +34 932 75 2004
Sweden: +46 853 527 827
Switzerland: +41 445 1124 88
United Kingdom: +44 330 221 0088
United States: +1 (571) 317-3129

Joining from a video-conferencing room or system?
Dial: 67.217.95.2##419048773
Cisco devices: 419048773@67.217.95.2

First GoToMeeting? Let's do a quick system check: https://link.gotomeeting.com/system-check