We are writing to you due to your past interest in this WG through
attendance at one of the previous three birds-of-a-feather (BoF)
sessions that were held in RDA P13, P14 and VP15 and its official launch
as a WG at VP16, or if you have corresponded with us through other channels.
We have organised a session at the upcoming RDA VP17 and which we
cordially invite you to attend: our session "WG on Raising FAIRness in
health data and health research performing organisations" has been
scheduled for *Breakout 1 on Tuesday 20th April 2021, 10:15 - 11:45 UTC
*and also *Breakout 9 on Thursday 22nd April 2021, 23:00 - 00:30 UTC.
*Full programme available here
*********Note that there are two sessions, both the same, aiming to make
it easier for more people to join us!***** Please join us at one
We also invite you to take a look at our RDA pages
to refresh your memory and to familiarise yourself with what we aim to
achieve (and also join our WG if you haven't already done so!). If our
aims are still in line with what you would like to see being
accomplished, then your help would be gratefully received. We have four
co-chairs, representing Europe, N America and Australasia, and would
ideally also like to invite another from Africa, Asia or S America. The
objectives of this WG should not just be focussed on high income
countries and so we see this as a valuable route to consider.
This meeting will primarily demonstrate the ongoing tasks that were
outlined in the case statement. Specifically, we will discuss the global
landscape analysis of FAIR adoption which was initiated by the co-chairs
and which requires input and review from the WG and the community. After
officially kicking off the WG at VP16, we anticipate nearing completion
of this landscape analysis. Based on the initial findings from this
report, we will use the meeting to also discuss the other concurrent
tasks of *(1)* impact assessment of any identified barriers, and *(2)*
analysis of national and international level policies and guidelines.
These tasks are projected to run further on compared to the landscape
analysis and this meeting will be used to discuss how this time should
be managed and to invite participation from WG members.
As part of the session, we are very pleased to announce that we will
also have Alicia Martínez García from the FAIRness for FHIR
(FAIR4FHIR) project to introduce and discuss their work and how this
relates to work in this WG.
_Alicia Martínez García_ (ORCID 0000-0001-5614-7747). PhD in
software engineering (University of Seville). She is researcher in
the Group of Research and Innovation in Biomedical Informatics,
Biomedical Engineering and Health Economy (Institute of Biomedicine
of Seville) since 2011. She is participant in lot of national and
international research projects, and specialized in
interoperability, software engineering, clinical decision support
tools, health informatics standards, FAIR principles, and
model-driven engineering. She is reviewer of scientific papers in
Journal of Biomedical Informatics and Applied Computing and
Informatics (Elsevier), and Journal of Medical Internet Research and
JMIR Human Factors (JMIR Publications). She is member of CTN139
committee in AENOR (Agencia Española de Normalización). She is
member of RDA (Research Data Alliance). She is collaborator with HL7
Spain, and member of the scientific committee in Jornadas Nacionales
de Informática Sanitaria en Andalucía. She is author of scientific
papers in national and international scientific journals, and
communications in national and international conferences.
Please note that Alicia will only be able to join us in person in
*Breakout Session 1* and will present a recorded version of her talk in
If you have any queries regarding our WG, especially if the answer can't
be found on the RDA pages, then please don't hesitate to get in touch.
We kindly ask that you circulate this to any other interested parties
that you may know.
We are really excited to share our work so far and your contributions
would be very welcome!
Many thanks and best wishes,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
- the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avda. Manuel Siurot s/n - 41013 SEVILLA
Tel. +34 *955 013 662 - (313662)* ::: Fax. +34 *955013310 - (313310)*