Health Data Interest Group meeting

Date & time: Tuesday 1st March - 14:30 - 16:00 - Working Meeting Session 2
Group name: Health Data
Meeting title: Health Data Challenges
The two chairs of the session are Yannis Ioannidis and Edwin Morley-Fletcher. They are co-chairing a proposed Interest Group on “Health Data”. In anticipation of a positive result and acceptance of the IG, they propose this session as the inaugural meeting of the IG. It will be a continuation of the P6 BoF Session that they co-chaired as well, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.

Proposal for the "Health Data" IG: https://rd-alliance.org/groups/health-data.html

- Establish the group identify the first set of challenges that its members would like to discuss.
- Identify the distinctive differences between Health Data and data from other environments. Outline the particular technical difficulties that these differences imply on the management, processing, and analysis of Health Data.
- Describe the global legal, political, and ethical context within which Health Data must be processed. Explore the security and privacy concerns that this context raises on Health Data management. Discuss innovative policies and methodological approaches to address these concerns.

- Introduction of the "Health Data" IG charter
- Summary of the discussion and conclusions of the precursor P6 BoF Session
- Position statement by the chairs on the session objectives
- Short presentations / interventions by the participants (preplanned, based on responses to call for talks)
- Open Discussion
- Next steps

• Clinicians wanting to use data technology to improve practice
• Biomedical researchers using data heavy analytical techniques
• Healthcare Data Analytics with data mining, machine learning, physiological modelling and image processing expertise
• HPC and distributed computing experts
• Policy-makers for Healthcare
• Health bioinformatics legal experts
• Healthcare administrators and Health Maintenance Organisations
• Pharmaceutical industry researchers and manufacturers
• Medical equipment researchers and manufacturers
• In silico modelling, testing and clinical trial experts

In the P6 BoF Session, there were participants with almost all of the above expertise. Similar diversity of expertise is expected for this session as well. Participants should prepare to intervene in the discussions on the three main objectives of the session based on their background.

Group chair serving as contact person
Yannis Ioannidis