Blockchain solutions for accessing Health data - RDA 11th Plenary WG meeting

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WG Meeting title

Blockchain solutions for accessing Health Data (Remote Access Instructions)

Collaborative session notes: 

https://docs.google.com/document/d/1S5mczsPKxc9YF_qNCo75SHYtkLQWRXwIQCrE...

Short introduction describing the scope of the group and if any previous activities

After two successful former meetings held at P9 in Barcelona and at P10 in Montreal, the Health Data Interest Group (HDIG) has gained support within the RDA community for the idea of establishing a WG focusing on Blockchain in Health data, as a technological advanced solution for securing data sharing among clinical institutions and individuals, bringing digital trust over a potentially un-trustable network. 

The aim of establishing a dedicated WG is:

  • to analyse and compare usages of the blockchain in healthcare, implementations of blockchain architectures, associated legal and socio-economic impacts and perspectives
  • to assess the potential of blockchain-based self-enacting smart contracts in handling consent and data permission systems minimising transaction costs
  • to assess whether and how the blockchain can ensure compliance with advanced data protection requirements (such as those defined by the EU General Data Protection Regulation – GDPR), yet making it happen seamlessly and efficiently, at scale.

The Group has been showing an anticipated awareness of a potential game-changer in the organisation of data access and data consenting, and Blockchain is recording an extended interest from various quarters.

Therefore, the "Blockchain applications in Health WG" has started the official RDA recognition process by submitting the case statement and is undergoing the review and endorsement process. The next Plenary in Berlin will be the occasion for the first offical meeting of the newly instituted WG, and to start addressing the WG objectives, activities, internal organization and deliverables, as described in the WG Case statement.

Additional links to informative material related to the group

"Blockchain applications in Health WG" case statement: https://rd-alliance.org/group/blockchain-applications-health-wg/case-sta...

"Blockchain applications in Health WG" working page: https://rd-alliance.org/groups/blockchain-applications-health-wg  

HDIG page: https://rd-alliance.org/groups/health-data.html
MyHealthMyData Project: www.myhealtmydata.eu

Meeting objectives

1) Present and Discuss the objectives of the Case statement of the Working Group

2) Adress and discuss the Work Plan for the 18 months of activities, intermediate goals and final deliverable, which will be a set of Guidelines for establishing a scalable blockchain-based data sharing system in healthcare
3) First steps to make the WG activities started, with special regards to internal organization in groups and first 6 months goals (state-of-the-art report)

Meeting agenda

* Introduction to the Working Group main objectives and WG Case statement
* Guest speakers on Blockchain and Health Data

* Description of the Work Plan and Internal discussion on the WG’s activities and organization and next steps (with special regards to the first 6 months goals)

Target audience:

For this session, we invite Healthcare Data Scientists dealing with data licensing and patient privacy issues, distributed system experts, privacy and security researchers from informatics and computer science, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Clinicians (aiming to use data technology to improve practice), Biomedical researchers (using analytics techniques), Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, In silico modelling, testing and clinical trial experts and other interested professionals.

Group chair serving as contact person: Edwin Morley-Fletcher

Type of meeting: Working meeting

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