Ethics and Social Aspects of Data IG

IG

Group details

Case Statement: 
IG Established
 

Ethical and social issues with respect to data archiving, sharing, and reuse cut across many of the technical and policy work of the rest of the RDA.  Such issues are complementary to but separate from legal and regulatory aspects, since technology usually outpaces law and law itself is underpinned by ethical agreements and social contracts.

Topics of interest include the kinds/types of data that can be archived and reused and under what circumstances; education of researchers, research respondents, administrators, ethics bodies; gray and difficult areas of research that create new challenges for data management  ("dangerous data", legacy data, retrospective analyses, medical humanities, wellness/lifestyle data); developing policies and practices that encourage appropriate data sharing yet protect researchers and their research respondents; obligations to and impacts on families, communities, and societies; the ethics of reuse.

https://www.zotero.org/groups/esad_interest_group_rda


Recent Activity

20 Mar 2018

RE: RDA 11th Plenary Berlin- Joint Session on Wednesday 22.03 at 13:00 - it is Thusday

A small correction, the meeting is on Thursday . At the subject line I
mistakenly wrote Wednesday
Correct date is : Thursday (22nd of March) at 13:30
Sorry for the confusion
Oya
- Show quoted text -From: Oya Beyan [mailto:***@***.***-aachen.de]
Sent: Dienstag, 20. März 2018 11:34
To: ***@***.***-groups.org
Subject: RDA 11th Plenary Berlin- Joint Session on Wednesday 22.03 at 13:00
Dear group members,

20 Mar 2018

RDA 11th Plenary Berlin- Joint Session on Wednesday 22.03 at 13:00

Dear group members,
This week on Thursday (22nd of March) at 13:30 we will have a joint meeting
together with interest groups Data for Development, Small Unmanned Aircraft
Systems' Data, Health Data and RDA/NISO Privacy Implications of Research
Data Sets.
Topic is "Ethics in FAIR Data: Ethical and practical issues of data sharing
and usage within and across disciplines". We aim to share experiences and
challenges related to ethical data reuse in different communities, and

03 Oct 2017

RDA Ethics and Social Aspects of Data - following the Montreal meeting

Dear RDA ESAD interest group members, We had a productive meeting at Montreal. Many thanks to those who contributed in discussions and come up with ideas to proceed. At the plenary, we had conducted a collaborative exercise to identify most pressing ethical concerns and most valuable contributions that our IG could make.

02 Aug 2017

RDA Plenary Meeting in Montreal

Dear Colleagues,
The schedule for the RDA Plenary in Montreal has been announced.
The ESAD will meet 11:00/12:30 on Thursday 21th September ('Breakout 8').
Objectives of the meeting are defined as identifying cross cutting topics
with various RDA groups, discuss ways of collaborating and initiate task
forces. Please see
https://www.rd-alliance.org/ig-ethics-and-social-aspects-data-rda-10th-p...
ry-meeting

22 Mar 2017

RDA Plenary 9, Barcelona Session - and Looking for a New Co-Chair

Dear Colleagues in the ESAD IG:
I hope I will be seeing many of you in Barcelona. ESAD is co-sponsoring a
session on data rescue on 6 April, 14:00-15:30, but there should be other
sessions of interest.
https://www.rd-alliance.org/rda-9th-plenary-joint-meeting-
ig-data-rescue-ig-domain-repositories-ig-metadata-ig-big-data-ig
In other news: I intend to resign as co-Chair (Dr Candice Lanius is the
other) after P9 as I don't have time, attention, and financial resources

23 Aug 2016

RDA P8 : "Responsible Sharing of Confidential Research Data"

Hi Everyone,
As Todd mentioned, this session has been scheduled for Friday, Sept. 16,
from 15:30 to 17:00.
I'd like to finish the agenda for the session. If you are willing to make
a presentation, please send me a title.
Here is what we have now:
George Alter, University of Michigan, “Sharing Confidential Data: Balancing
Access and Risk”
Mercè Crosas, “The DataTags system: Sharing sensitive data with confidence”
Ruth Duerr, “On the Ethical Handling of Local and Traditional Knowledge
Data”
Candice Lanius, ?